SMA in Adults Expert Series

The Role of Evidence in Shared Decision-Making for Adults Living with SMA

Nusinersen in adults living with SMA: learning from clinical practice

Outcome measures in adults living with SMA: standardization versus personalization

The Role of Evidence in Shared Decision-Making for Adults Living with SMA

What will be discussed:

John Day

Professor of Neurology
Stanford Neuroscience
Health Center
Palo Alto, CA, USA

Tina Duong

Research Physical Therapist
Stanford Neuroscience
Health Center
Palo Alto, CA, USA

Connie Wolford

Nurse Practitioner
Stanford Neuroscience
Health Center
Palo Alto, CA, USA

Biogen-66196

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Nusinersen in adults living with SMA: learning from clinical practice

Practical considerations in the treatment of adult patients with SMA: experience from Essen.
Evidence in the treatment of adult patients with SMA: experience from Germany.

Prof. Christoph
Kleinschnitz

Director of Neurology Department
University Hospital Essen
Germany

PD Dr. Tim
Hagenacker

Head of Neuromuscular Diseases Unit
University Hospital Essen
Germany

Biogen-66203

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Outcome measures in adults living with SMA: standardization versus personalization

Outcome measures in adults living with SMA: what are our challenges?
Patient-reported and exploratory outcome measures in adults living with SMA: where do we want to go?

Valeria Sansone

Director of Neuromuscular
Omnicentre (NEMO)
Milan, Italy

Emma Ciafaloni

Professor of neurology and pediatrics
University of Rochester
Medical Center
Rochester, NY, USA

Biogen-66204

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