Outcome measures in adults living with SMA: standardization versus personalization
What will be discussed:
- Outcome measures in adults living with SMA: what are our challenges?
- Patient-reported and exploratory outcome measures in adults living with SMA: where do we want to go?
Valeria Sansone
Director of Neuromuscular
Omnicentre (NEMO)
Milan, Italy
Omnicentre (NEMO)
Milan, Italy
Emma Ciafaloni
Professor of neurology and pediatrics
University of Rochester
Medical Center
Rochester, NY, USA
University of Rochester
Medical Center
Rochester, NY, USA
Biogen-66204
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